What motivates public collaborators to become and stay involved in health research?

ABSTRACT:

Background

People with lived experience of health and illness are increasingly being involved in research. Knowing what creates interest in becoming involved in health research may help identify appropriate ways of facilitating meaningful involvement. The study aimed to investigate why people became public collaborators in health research and what helped sustain their commitment to staying involved.

Methods

Semistructured individual qualitative interviews were conducted with 11 Norwegian public collaborators recruited from patient organisations. To enhance the quality and relevance of this study, three public collaborators were involved in framing the study and in the data analysis. One of them is a coauthor of this paper. The interviews were analysed through reflexive thema

SUBMITTER: Rossvoll TB 

PROVIDER: S-EPMC10863223 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature