Does a novel community-based outpatient palliative care intervention for Parkinson's disease and related disorders improve care? Qualitative results from patients and care partners.

ABSTRACT:

Background

Palliative care has the potential to address significant unmet needs in people with Parkinson's disease and related disorders, but models that rely on in-person specialty palliative care teams have limited scalability.

Aim

To describe patient and care partner experiences with a novel, community-based palliative care intervention for Parkinson's disease.

Design

Qualitative study embedded in a randomized clinical trial to document participant experiences with a novel palliative care intervention (community neurologist training and remote team-based specialist palliative care). Transcripts were coded and thematically analyzed through a combination of team-based inductive and deductive coding.

Setting/participants

Twenty-eight patients and 33 care partne

SUBMITTER: Bock MA 

PROVIDER: S-EPMC10865748 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature