Quality of life assessment instruments in children and adolescents with neuromuscular diseases: a systematic scoping review.

ABSTRACT:

Objective

(1) To identify instruments used to assess quality of life (QoL) in children and adolescents with neuromuscular diseases; (2) To identify the psychometric properties contained in these instruments.

Methods

This is a scoping review in which the electronic databases Embase, Scielo, Scopus, Pubmed and Lilacs were used as well as grey literature. The following terms were used in the search for articles published in the last 10 years: children, adolescents, neuromuscular disease, and quality of life.

Results

In total, 15 articles were included and evaluated, indicating 7 instruments used to assess QoL (PedsQL™ Inventory 3.0 Neuromuscular Module, the PedsQL™ 4.0, the PedsQL DMD Module, the PedsQL ™ MFS, the SOLE, the KIDSCREEN and the LSI-A). The number of items r

SUBMITTER: Cruz KLT 

PROVIDER: S-EPMC10870459 | biostudies-literature | 2024 Feb

REPOSITORIES: biostudies-literature