The diagnostic journey of pulmonary arterial hypertension patients: results from a multinational real-world survey.

ABSTRACT:

Background

Pulmonary arterial hypertension (PAH) is a life-threatening, progressive disease often diagnosed late in its course.

Objectives

To present patient-reported data that were captured within a large, multinational, point-in-time survey of PAH-treating physicians and their patients to better understand the diagnostic journey.

Design

Cross-sectional survey conducted in five European countries (EU5), Japan and the USA.

Methods

PAH-treating pulmonologists, cardiologists, rheumatologists or internists (USA only) completed a patient record form (PRF) for the next four consecutive adult PAH patients they saw; these patients filled in a patient self-completion (PSC) form on an anonymous, voluntary basis. Our report focuses on patient data; data are from PSC form

SUBMITTER: Small M 

PROVIDER: S-EPMC10870813 | biostudies-literature | 2024 Jan-Dec

REPOSITORIES: biostudies-literature