Hard to Reach and Hidden: Improving the Identification of Young Dementia Carers.

ABSTRACT: Young dementia carers (YDCs) rarely receive appropriate training and support. Their visibility and identification remain dangerously low, and, consequently, support initiatives being developed are failing to reach them. This study explored the success (or failure) of YDC identification pathways as well as the barriers and enablers to their implementation. An explorative qualitative approach was followed, drawing on the experiences of parents of YDCs, dementia researchers, professionals in the field of dementia/young carers, and young adult carers. Data collection involved semi-structured interviews (n = 17) and a participatory 2-h workshop to discuss and critique preliminary themes as well as explore strategies to increase the visibility and identification of YDCs. Five themes were

SUBMITTER: Masterson-Algar P 

PROVIDER: S-EPMC10871087 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature