What matters to people and families affected by cerebral small vessel disease (SVD)? A qualitative grounded theory investigation.

ABSTRACT:

Background

Cerebral small vessel disease (SVD) is a common neurological disorder contributing to stroke, dementia, and disability. No treatment options exist although clinical trials are ongoing. We aimed to understand what matters to people and families affected by SVD to inform future research.

Methods

We thematically analysed unsolicited correspondences from members of the public addressed to members of the Edinburgh SVD Research Group on a variety of subjects related to SVD. We used inductive thematic codes, categorised under concerns, requests, emotions, and contributions, to form a grounded theory that categorised and ranked concerns raised.

Results

101 correspondents expressed 346 concerns between August 2015 and February 2021, mostly via email. 60 corresponden

SUBMITTER: Hwai SWC 

PROVIDER: S-EPMC10877198 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature