Parent Priorities in End-of-Life Care for Children With Cancer.

ABSTRACT:

Importance

Robust quality measures to benchmark end-of-life care for children with cancer do not currently exist; 28 candidate patient-centered quality measures were previously developed.

Objective

To prioritize quality measures among parents who lost a child to cancer.

Design, setting, and participants

This survey study was conducted using an electronic, cross-sectional discrete choice experiment (DCE) with maximum difference scaling from January to June 2021 in the US. In each of 21 questions in the DCE, participants were presented with a set of 4 quality measures and were asked to select the most and least important measures within each set. All 28 quality measures were presented an equal number of times in different permutations. In the volunteer sample, 69 eligib

SUBMITTER: Ananth P 

PROVIDER: S-EPMC10878399 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature