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Dataset Information

Research Participants' Perspectives on Precision Diagnostics for Alzheimer's Disease.


ABSTRACT:

Background

Understanding research participants' responses to learning Alzheimer's disease (AD) risk information is important to inform clinical implementation of precision diagnostics given rapid advances in disease modifying therapies.

Objective

We assessed participants' perspectives on the meaning of their amyloid positron emission tomography (PET) imaging results for their health, self-efficacy to understand their results, psychological impact of learning their results, experience receiving their results from the clinical team, and interest in genetic testing for AD risk.

Methods

We surveyed individuals who were being clinically evaluated for AD and received PET imaging six weeks after the return of results. We analyzed responses to close-ended survey items by PET

SUBMITTER: Smith HS 

PROVIDER: S-EPMC10894569 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature