Essential requirements for the governance and management of data trusts, data repositories, and other data collaborations.

ABSTRACT:

Introduction

Around the world, many organisations are working on ways to increase the use, sharing, and reuse of person-level data for research, evaluation, planning, and innovation while ensuring that data are secure and privacy is protected. As a contribution to broader efforts to improve data governance and management, in 2020 members of our team published 12 minimum specification essential requirements (min specs) to provide practical guidance for organisations establishing or operating data trusts and other forms of data infrastructure.

Approach and aims

We convened an international team, consisting mostly of participants from Canada and the United States of America, to test and refine the original 12 min specs. Twenty-three (23) data-focused organisations and initiativ

SUBMITTER: Paprica PA 

PROVIDER: S-EPMC10898504 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature