Development of the Parental Experience with Care for Children with Serious Illnesses (PRECIOUS) quality of care measure.

ABSTRACT:

Background

Parent-reported experience measures are part of pediatric Quality of Care (QoC) assessments. However, existing measures were not developed for use across multiple healthcare settings or throughout the illness trajectory of seriously ill children. Formative work involving in-depth interviews with parents of children with serious illnesses generated 66 draft items describing key QoC processes. Our present aim is to develop a comprehensive parent-reported experience measure of QoC for children with serious illnesses and evaluate its content validity and feasibility.

Methods

For evaluating content validity, we conducted a three-round Delphi expert panel review with 24 multi-disciplinary experts. Next, we pre-tested the items and instructions with 12 parents via cognit

SUBMITTER: Ang FJL 

PROVIDER: S-EPMC10921687 | biostudies-literature | 2024 Mar

REPOSITORIES: biostudies-literature