Participatory translational science of neurodivergence: model for attention-deficit/hyperactivity disorder and autism research.

ABSTRACT:

Background

There are increasing calls for neurodivergent peoples' involvement in research into neurodevelopmental conditions. So far, however, this has tended to be achieved only through membership of external patient and public involvement (PPI) panels. The Regulating Emotions - Strengthening Adolescent Resilience (RE-STAR) programme is building a new participatory model of translational research that places young people with diagnoses of attention-deficit hyperactivity disorder (ADHD) and autism at the heart of the research team so that they can contribute to shaping and delivering its research plan.

Aims

To outline the principles on which the RE-STAR participatory model is based and describe its practical implementation and benefits, especially concerning the central role

SUBMITTER: Sonuga-Barke EJS 

PROVIDER: S-EPMC10933558 | biostudies-literature | 2024 Apr

REPOSITORIES: biostudies-literature