Examination of validity of identifying congenital heart disease from hospital discharge data without a gold standard: Using a data linkage approach.

ABSTRACT:

Background

Administrative health data has been used extensively to examine congenital heart disease (CHD). However, the accuracy and completeness of these data must be assessed.

Objectives

To use data linkage of multiple administrative data sources to examine the validity of identifying CHD cases recorded in hospital discharge data.

Methods

We identified all liveborn infants born 2013-2017 in New South Wales, Australia with a CHD diagnosis up to age one, recorded in hospital discharge data. Using record linkage to multiple data sources, the diagnosis of CHD was compared with five reference standards: (i) multiple hospital admissions containing CHD diagnosis; (ii) receiving a cardiac procedure; (iii) CHD diagnosis in the Register of Congenital Conditions; (iv) cardiac-

SUBMITTER: He WQ 

PROVIDER: S-EPMC10946896 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature