The Views of Patients with Isolated Rapid Eye Movement Sleep Behavior Disorder on Risk Disclosure.

ABSTRACT:

Background

Isolated rapid eye movement sleep behavior disorder (iRBD) is associated with an increased risk of Parkinson's disease and other synucleinopathies. There is no consensus about disclosure of this risk to patients with iRBD.

Objective

The objective of our study was to assess the experiences of risk disclosure in a group of patients with iRBD and their views on what, when, and how this should be done.

Methods

A survey was administered to patients with iRBD to explore their experiences and views on risk disclosure.

Results

Thirty-one patients with iRBD (28 males; mean age, 70 [SD 8.7] years; mean disease duration, 8.7 [SD 6.4] years) were included. A third reported they had not been informed about the link between iRBD and other conditions by clinicians

SUBMITTER: Perez-Carbonell L 

PROVIDER: S-EPMC10947281 | biostudies-literature | 2023 Jun

REPOSITORIES: biostudies-literature