Attitude towards consent-free research use of personal medical data in the general German population.

ABSTRACT:

Background

The design of appropriate consent procedures for the secondary use of personal health data is a key concern of current medical research. In Germany, the concept of 'data donation' has recently come into focus, defined as a legal entitlement to the research use of personal medical data without prior consent, combined with an easy-to-exercise right of the data subjects to opt-out.

Methods

Standardized online interviews of 3,013 individuals, representative of the German online population, were conducted in August 2022 to determine their attitude towards data donation for medical research.

Results

A majority of participants supported a consent-free data donation regulation, both for publicly funded (85.1%) and for private medical research (66.4%). Major predict

SUBMITTER: Richter G 

PROVIDER: S-EPMC10951576 | biostudies-literature | 2024 Mar

REPOSITORIES: biostudies-literature