The health care and societal costs of inherited retinal diseases in Australia: a microsimulation modelling study.

ABSTRACT:

Objectives

To estimate the health care and societal costs of inherited retinal diseases (IRDs) in Australia.

Design, setting, participants

Microsimulation modelling study based on primary data - collected in interviews of people with IRDs who had ophthalmic or genetic consultations at the Children's Hospital at Westmead or the Save Sight Institute (both Sydney) during 1 January 2019 - 31 December 2020, and of their carers and spouses - and linked Medicare Benefits Schedule (MBS) and Pharmaceutical Benefits Schedule (PBS) data.

Main outcome measures

Annual and lifetime costs for people with IRDs and for their carers and spouses, grouped by payer (Australian government, state governments, individuals, private health insurance) and type (health care costs; societal costs

SUBMITTER: Schofield D 

PROVIDER: S-EPMC10952471 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature