Experience of pediatric to adult transition in immunology services: patient experience questionnaire and micro-costing analysis.

ABSTRACT: The effective transition from pediatric to adult care for individuals with chronic medical conditions should address the medical, psychosocial and educational needs of the cohort. The views and experiences of service users and their families are an integral component of service development. This study sought to evaluate the current provision of transition services from pediatric immunology services to adult immunology services for patients with a diagnosis of an inborn error of immunity at St. James's Hospital, Dublin. We gathered patient perspectives on the experience of the transition process using a structured survey. In addition, we adopted a micro-costing technique to estimate the cost of implementing the current standard of care for these patients. Results of a micro-costing analysis

SUBMITTER: King C 

PROVIDER: S-EPMC10952820 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature