Dataset Information

Pain coping tools for children and young adults with a neurodevelopmental disability: A systematic review of measurement properties.

ABSTRACT:

Aim

To systematically identify and evaluate the measurement properties of patient-reported outcome measures (PROMs) and observer-reported outcome measures (parent proxy report) of pain coping tools that have been used with children and young adults (aged 0-24 years) with a neurodevelopmental disability.

Method

A two-stage search using MEDLINE, Embase, CINAHL, Web of Science, and PsycInfo was conducted. Search 1 in August 2021 identified pain coping tools used in neurodevelopmental disability and search 2 in September 2021 located additional studies evaluating the measurement properties of these tools. Methodological quality was assessed using the COnsensus-based Standards for the Selection of Health Measurement INstruments (COSMIN) guidelines (PROSPERO protocol registration no. CRD42021273031).

Results

Sixteen studies identified seven pain coping tools, all PROMs and observer-reported outcome measures (parent proxy report) versions. The measurement properties of the seven tools were appraised in 44 studies. No tool had high-quality evidence for any measurement property or evidence for all nine measurement properties as outlined by COSMIN. Only one tool had content validity for individuals with neurodevelopmental disability: the Cerebral Palsy Quality of Life tool.

Interpretation

Pain coping assessment tools with self-report and parent proxy versions are available; however, measurement invariance has not been tested in young adults with a neurodevelopmental disability. This is an area for future research.

SUBMITTER: Smith NL

PROVIDER: S-EPMC10952855 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature

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Publications

Pain coping tools for children and young adults with a neurodevelopmental disability: A systematic review of measurement properties.

Smith Nadine L NL Smith Meredith G MG Gibson Noula N Imms Christine C Thornton Ashleigh L AL Harvey Adrienne R AR

Developmental medicine and child neurology 20220916 3

<h4>Aim</h4>To systematically identify and evaluate the measurement properties of patient-reported outcome measures (PROMs) and observer-reported outcome measures (parent proxy report) of pain coping tools that have been used with children and young adults (aged 0-24 years) with a neurodevelopmental disability.<h4>Method</h4>A two-stage search using MEDLINE, Embase, CINAHL, Web of Science, and PsycInfo was conducted. Search 1 in August 2021 identified pain coping tools used in neurodevelopmental ...[more]

PMID: 36111806

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Dataset Information

Pain coping tools for children and young adults with a neurodevelopmental disability: A systematic review of measurement properties.

Aim

Method

Results

Interpretation

Publications

Pain coping tools for children and young adults with a neurodevelopmental disability: A systematic review of measurement properties.

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