First Phase Development of a Patient-reported Outcome Measure for Midface Oncology.

ABSTRACT:

Background

Facial cancer surgery involving the midface (comprising the lower eyelids, nose, cheeks, and upper lip) can have debilitating life-changing functional, social, and psychological impacts on the patient. Midface symptoms are inadequately captured by existing patient-reported outcome measures (PROMs). PROMs are increasingly used for individual patient care, quality improvement, and standardized reporting of treatment outcomes. This study aimed to present our findings from the first phase of the development of a midface, specifically periocular and nasal, PROM.

Methods

After international guidance for PROM development, the first phase comprised identification of salient issues and item generation. Fifteen patients who had midface surgery and 10 clinicians from various

SUBMITTER: Yung AE 

PROVIDER: S-EPMC10959565 | biostudies-literature | 2024 Mar

REPOSITORIES: biostudies-literature