Health data sharing attitudes towards primary and secondary use of data: a systematic review.

ABSTRACT:

Background

To receive the best care, people share their health data (HD) with their health practitioners (known as sharing HD for primary purposes). However, during the past two decades, sharing for other (i.e., secondary) purposes has become of great importance in numerous fields, including public health, personalized medicine, research, and development. We aimed to conduct the first comprehensive overview of all studies that investigated people's HD sharing attitudes-along with associated barriers/motivators and significant influencing factors-for all data types and across both primary and secondary uses.

Methods

We searched PubMed, MEDLINE, PsycINFO, Web of Science, EMBASE, and CINAHL for relevant studies published in English between database inception and February 28, 20

SUBMITTER: Cascini F 

PROVIDER: S-EPMC10963197 | biostudies-literature | 2024 May

REPOSITORIES: biostudies-literature