Smidt Heart Institute Takotsubo Registry - Study design and baseline characteristics.

ABSTRACT:

Background

Takotsubo syndrome (TTS) is an acute form of transient systolic heart failure that occurs predominantly among women and in association with emotional or physical stressors. The Smidt Heart Institute Takotsubo Registry aims to establish a database through an online patient-advocate registry for deep phenotyping of this syndrome.

Methods

The Takotsubo Registry is a retrospective and prospective observational registry of individuals with a prior history of TTS. Participants are sourced through physician referrals, medical records review, peer- and self-referrals using social media. Research Electronic Data Capture (REDCap) and Mitra® microsamplers are used to collect questionnaire data and blood samples to facilitate completely remote study enrollment and participati

SUBMITTER: Obrutu O 

PROVIDER: S-EPMC10978169 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature