Stakeholders' Views on Information Needed in a Patient Decision Aid for Microtia Reconstruction.

ABSTRACT:

Objective

To assess which information about microtia and the possible reconstructive options health care providers (HCPs), patients and parents believe should be included in a patient decision aid (PtDA).

Design

A mixed-methods study comprised of an online survey of HCPs and focus group discussions with patients and parents.

Participants

Survey respondents were members of the International Society for Auricular Reconstruction (ISAR). Focus group participants were patients with microtia and their parents, recruited through the microtia outpatient clinic at Amsterdam UMC, and through a Dutch patient organization for cleft and craniofacial conditions.

Methods

An online, investigator-made survey was sent to ISAR members in December 2021. Semi-structured focus group

SUBMITTER: Ronde EM 

PROVIDER: S-EPMC10981206 | biostudies-literature | 2024 May

REPOSITORIES: biostudies-literature