Patient and Public Involvement in Inflammatory Bowel Disease Research-A Scoping Review.

ABSTRACT:

Background

Interest in patient and public involvement in research has grown. Medical, health, and social care research has demonstrated several benefits of patient and public engagement, such as empowering user input and reducing attrition rates in clinical trials. To date, no study has reviewed patient engagement in inflammatory bowel disease (IBD). We aimed to describe the benefits, challenges, and best practices of patient engagement in IBD research.

Methods

We performed a systematic search on MEDLINE, EMBASE, and Cochrane for all clinical IBD research studies in which patients were involved in the research process (1946- 2023). Patient input was considered in: (1) study design, (2) study execution, (3) research dissemination, and/or (4) other domains not specified here.

SUBMITTER: Elsolh K 

PROVIDER: S-EPMC10999768 | biostudies-literature | 2024 Apr

REPOSITORIES: biostudies-literature