Awareness, access, and communication: provider perspectives on early intervention services for children with sickle cell disease.

ABSTRACT:

Purpose

This study aimed to identify determinants influencing the utilization of early intervention services among young children with sickle cell disease (SCD) based on perspectives from medical and early intervention providers.

Design and methods

Early intervention and medical providers from the catchment area surrounding St. Jude Children's Research Hospital and Washington University were recruited (20 total providers). Interviews were completed over the phone and audio recorded. All interviews were transcribed verbatim, coded, and analyzed using inductive thematic analysis.

Results

Three overarching themes were identified from both groups: Awareness (e.g., lack of awareness about the EI system and SCD), Access (e.g., difficulties accessing services), and Communica

SUBMITTER: Heitzer AM 

PROVIDER: S-EPMC11000123 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature