Different patient versus provider perspectives on living with Cushing's disease.

ABSTRACT:

Context

Patients with Cushing's disease (CD) face challenges living with and receiving appropriate care for this rare, chronic condition. Even with successful treatment, many patients experience ongoing symptoms and impaired quality of life (QoL). Different perspectives and expectations between patients and healthcare providers (HCPs) may also impair well-being.

Objective

To examine differences in perspectives on living with CD between patients and HCPs, and to compare care goals and unmet needs.

Design

Memorial Sloan Kettering Pituitary Center established an annual pituitary symposium for pituitary patients and HCPs. Through anonymous pre-program surveys distributed at the 2020 and 2022 symposia, patients and HCPs answered questions related to their own sense, or per

SUBMITTER: Halstrom A 

PROVIDER: S-EPMC11009766 | biostudies-literature | 2024 Apr

REPOSITORIES: biostudies-literature