Measures of Patient and Surrogate Preparedness for End-of-Life Decision-Making.

ABSTRACT:

Context

Reliable and valid measures are critical in accurately assessing outcomes of advance care planning interventions (ACP) for end-of-life (EOL) decision-making.

Objectives

To develop measures of preparedness for EOL decision-making for patients with end-stage renal disease and their surrogates (an exemplar population).

Methods

In this 3-phase study, Phases 1 and 2 included a cross-discipline concept analysis of the preparedness construct, item generation for patient and surrogate scales (82 items), evaluation of content validity and readability, cognitive interviewing, and item reduction. In phase 3, the retained 26 patient and 25 surrogate items were administered to 426 patients and 426 surrogates during a multisite trial of an ACP intervention versus care-as-us

SUBMITTER: Song MK 

PROVIDER: S-EPMC11032227 | biostudies-literature | 2024 May

REPOSITORIES: biostudies-literature