Patient- and proxy-reported quality of life in advanced dementia with Lewy bodies.

ABSTRACT:

Introduction

Little is known regarding quality of life (QoL) in dementia with Lewy bodies (DLB), particularly in advanced stages.

Methods

Dyads of individuals with moderate-advanced DLB and their primary caregivers were recruited from specialty clinics, advocacy organizations, and research registries. The study collected demographics, disease-related measures, and measures of patient/caregiver experiences.

Results

The Quality of Life in Alzheimer's Disease (QoL-AD) was completed by the person with DLB and the caregiver (proxy) in 61 dyads; 85 dyads had only a proxy-completed QoL-AD. Patient- and proxy-reported scores were moderately correlated (r = 0.57, P < 0.0001). Worse patient-reported QoL correlated with daytime sleepiness, autonomic symptom burden, and behaviora

SUBMITTER: Armstrong MJ 

PROVIDER: S-EPMC11032544 | biostudies-literature | 2024 Apr

REPOSITORIES: biostudies-literature