Development and Testing of a Chronic-Disease Patient Experience Mapping Toolbox.

ABSTRACT:

Background

Stakeholders increasingly expect research and care delivery to be guided by and to optimize patient experiences. However, standardized tools to engage patients to gather high-quality data about their experiences, priorities, and desired outcomes are not publicly available. The objective of this study was to develop and test a Toolbox with a disease-agnostic interview guide template and accompanying resources to assist researchers in engaging patients living with chronic disease in a dialogue about their experiences.

Methods

Guided by a multidisciplinary workgroup, a targeted literature review (PubMed) was conducted, followed by group discussions to identify/thematically organize patient experience concepts, development of a conceptual model, and drafting of an int

SUBMITTER: Oehrlein EM 

PROVIDER: S-EPMC11039502 | biostudies-literature | 2024 May

REPOSITORIES: biostudies-literature