"It changes everything": Understanding how people experience the impact of living with a lower-grade glioma.

ABSTRACT:

Background

Quantitative studies show people living with a lower-grade glioma (LGG) often report low health-related quality of life. However, it is unclear how this impact is experienced; resulting supportive care needs are also poorly understood. We explored how people experience the impact of living long-term with an LGG, to help identify potential supportive care needs.

Methods

We conducted semi-structured interviews with a diverse group of people with LGG (n = 28) across the United Kingdom, who had completed primary treatment (male n = 16, female n = 12, mean age 54.6 years, mean time since diagnosis 8.7 years). Interviews were transcribed and inductive thematic analysis was conducted.

Results

Four themes relating to the impact experiences of p

SUBMITTER: Rimmer B 

PROVIDER: S-EPMC11085834 | biostudies-literature | 2024 Jun

REPOSITORIES: biostudies-literature