COS-PPA: protocol to develop a core outcome set for primary progressive aphasia.

ABSTRACT:

Introduction

The term primary progressive aphasia (PPA) describes a group of language-led dementias. Disease-modifying treatments that delay, slow or reverse progression of PPA are currently lacking, though a number of interventions to manage the symptoms of PPA have been developed in recent years. Unfortunately, studies exploring the effectiveness of these interventions have used a variety of different outcome measures, limiting comparability. There are more constructs, apart from word retrieval, that are important for people with PPA that have not received much attention in the research literature. Existing core outcome sets (COS) for dementia and non-progressive aphasia do not meet the needs of people with PPA, highlighting a need to develop a specific COS for PPA.

Methods an

SUBMITTER: Volkmer A 

PROVIDER: S-EPMC11086495 | biostudies-literature | 2024 May

REPOSITORIES: biostudies-literature