"They don't care to study it": Trust, race, and health care experiences among patient-caregiver dyads with multiple myeloma.

ABSTRACT:

Background

Medical mistrust, rooted in unethical research, is a barrier to cancer-related health care for Black/African American (AA) persons. Understanding trust, mistrust, and health care experiences is crucial, especially in multiple myeloma (MM), which disproportionately burdens Black/AA persons in incidence and survival.

Study purpose

This study qualitatively examines the experiences of Black/AA and White dyads (patient with MM and adult caregiver) to gain insights into these phenomena.

Methods

From November 2021 to April 2022, we recruited 21 dyads from the UNC Lineberger Comprehensive Cancer Center. Participants completed a sociodemographic survey and a 60-90 min semi-structured interview. We used ATLAS.ti v9 for project management and to facilitate data analys

SUBMITTER: Grant SJ 

PROVIDER: S-EPMC11106687 | biostudies-literature | 2024 May

REPOSITORIES: biostudies-literature