Voices of unpaid carers: problems and prospects in accessing palliative care and self-care information, resources and services.

ABSTRACT:

Background

Unpaid carers make a substantial contribution to the health economy and carers of palliative patients are particularly vulnerable due to special patient needs and excessive carer burden. The Australian Government recently implemented the Integrated Carer Support Service Model to provide a range of free services to carers in the community. However, it is unclear whether such initiatives are effective and, more importantly, how carers of palliative patients gain access to information, support and services for the patient and themselves.

Objectives

We sought to investigate unpaid carers' experiences in accessing information and resources for support with patient care with a specific focus on palliative care resources and to determine carers' access to information and

SUBMITTER: Van Dinther K 

PROVIDER: S-EPMC11141225 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature