Discrepancies between self- and proxy-rated quality of life in people living with dementia.

ABSTRACT:

Introduction

The aim of this study was to analyze discrepancies between self- and proxy-rated health-related quality of life (HRQoL), measured with the EuroQol 5 Dimension 5 Level survey (EQ-5D-5L), in people living with dementia (PlwD) and their caregivers on an individual response level.

Methods

EQ-5D-5L, sociodemographic and clinical data were obtained from baseline data of n = 174 dyads of a cluster-randomized, controlled intervention trial. Self- and proxy-rated EQ-5D-5L health profiles were evaluated in terms of response distribution and agreement (weighted Kappa), and discrepancies in individual dimension level were analyzed using the Paretian Classification of Health Change (PCHC) as well as the presence and degree of inconsistencies between ratings.

Result

SUBMITTER: Buchholz M 

PROVIDER: S-EPMC11186300 | biostudies-literature | 2024 Apr-Jun

REPOSITORIES: biostudies-literature