Understanding Experiences of Caregivers of Spouses With Dementia During Caregiver Health Care Emergencies.

ABSTRACT:

Background and objectives

Caregivers of persons with dementia are frequently spouses. Caregiver hospitalization causes disruption to caregiving. The goal of this research was to understand the preparedness and stress trajectory of peri-caregiver hospitalization.

Research design and methods

Mixed methods were used. Caregivers of spouses with dementia (n = 1,000) were surveyed to determine their perceived preparedness for their own hospitalization. Journey mapping interviews (n = 18) were used to map caregivers' experiences during 5 phases: (a) their spouse with dementia (SWD)'s dementia diagnosis; (b) their SWD's dementia progression; (c) their own health event; (d) their own hospitalization; and (e) their own return home from the hospital.

Results

Among the 452 (45%)

SUBMITTER: Daddato AE 

PROVIDER: S-EPMC11194629 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature