Non-kin caregivers of terminally ill people: Contributions, experiences, and needs: A protocol for a mixed-methods study.

ABSTRACT:

Background

The role of non-kin caregivers, such as friends, neighbours, and acquaintances, in providing end-of-life care is significant but often overlooked in research and policy discussions. These caregivers provide extensive support for individuals in end-of-life care, in addition to or instead of family members. However, there is limited evidence in the literature regarding the experiences, burdens, and benefits of non-kin caregivers.

Aims

The aim of this research is to examine the role and contributions of non-kin caregivers in end-of-life care. The study intends to uncover their experiences, associated challenges, benefits, and requirements for support.

Methods

In order to achieve this objective, a mixed-methods approach will be employed, gathering data through

SUBMITTER: Heckel M 

PROVIDER: S-EPMC11210750 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature