What does good care look like to people living with congenital heart disease in the 21st century? Qualitative online, asynchronous discussion forums.

ABSTRACT:

Objectives

As part of a wider study, our aim was to elicit perspectives of people with congenital heart disease (CHD) and/or their parents/carers about their experiences of healthcare and what is important to them when receiving care.

Design and setting

A qualitative study involving a series of closed, asynchronous, online discussion forums underpinned by an interpretivist framework and set up and moderated by three patient charities via their Facebook pages.

Participants

People with CHD and parents/carers of people with CHD from the UK.

Results

Five forums were run for 12-24 weeks across the three charities, and 343 participants signed up to the forums. Four linked themes related to processes of care were identified following thematic analysis of the transcrip

SUBMITTER: Wray J 

PROVIDER: S-EPMC11218017 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature