Mind the gap: Comparing parents' information needs about impending preterm birth to current clinical practices using a mixed methods approach.

ABSTRACT:

Objective

To identify parents' information needs about impending very preterm birth and compare these needs to current information practices in the Netherlands.

Methods

Step 1: We surveyed N = 203 parents of preterm infants to assess their information needs. Data were analyzed using inductive thematic analysis. Step 2a: We collected information resources from hospitals (N = 9 NICUs) and via an online search. These materials were analyzed using deductive thematic analysis. Step 2b: We compared findings from Steps 1-2a.

Results

We identified four themes pertaining to parents' information needs: (1) participation in care, (2) emotional wellbeing, (3) experience/success stories, and (4) practical information about prematurity. Clinicians' communicative sk

SUBMITTER: van Zijl ACM 

PROVIDER: S-EPMC11219962 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature