Improving Conversations about Parkinson's Dementia.

ABSTRACT:

Background

People with Parkinson's disease (PD) have an increased risk of dementia, yet patients and clinicians frequently avoid talking about it due to associated stigma, and the perception that "nothing can be done about it". However, open conversations about PD dementia may allow people with the condition to access treatment and support, and may increase participation in research aimed at understanding PD dementia.

Objectives

To co-produce information resources for patients and healthcare professionals to improve conversations about PD dementia.

Methods

We worked with people with PD, engagement experts, artists, and a PD charity to open up these conversations. 34 participants (16 PD; 6 PD dementia; 1 Parkinsonism, 11 caregivers) attended creative workshops to exami

SUBMITTER: Dobreva I 

PROVIDER: S-EPMC11233842 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature