The National Sleep Research Resource: making data findable, accessible, interoperable, reusable and promoting sleep science.

ABSTRACT: This paper presents a comprehensive overview of the National Sleep Research Resource (NSRR), a National Heart Lung and Blood Institute-supported repository developed to share data from clinical studies focused on the evaluation of sleep disorders. The NSRR addresses challenges presented by the heterogeneity of sleep-related data, leveraging innovative strategies to optimize the quality and accessibility of available datasets. It provides authorized users with secure centralized access to a large quantity of sleep-related data including polysomnography, actigraphy, demographics, patient-reported outcomes, and other data. In developing the NSRR, we have implemented data processing protocols that ensure de-identification and compliance with FAIR (Findable, Accessible, Interoperable, Reusable)

SUBMITTER: Zhang Y 

PROVIDER: S-EPMC11236948 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature