Development of the Huntington Support App (HD-eHelp study): a human-centered and co-design approach.

ABSTRACT:

Introduction

eHealth seems promising in addressing challenges in the provision of care for Huntington's disease (HD) across Europe. By harnessing information and communication technologies, eHealth can partially relocate care from specialized centers to the patients' home, thereby increasing the availability and accessibility of specialty care services beyond regional borders. Previous research on eHealth (development) in HD is however limited, especially when it comes to including eHealth services specifically designed together with HD gene expansion carriers (HDGECs) and their partners to fit their needs and expectations.

Methods

This article describes the qualitative human-centered design process and first evaluations of the Huntington Support App prototype: a web-app aim

SUBMITTER: van Lonkhuizen PJC 

PROVIDER: S-EPMC11246862 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature