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Development of a self-management mobile app for bereaved adolescents: evaluating patient and public involvement.


ABSTRACT: Background: Losing a family member during childhood is a potentially traumatic event and increases the risk of mental health difficulties. Adolescents have the right to express their views in research of relevance to them, but few studies have involved bereaved adolescents as collaborators (i.e. Patient and Public Involvement (PPI)). Furthermore, to ensure meaningful and non-tokenistic involvement, bereaved adolescents' levels of participation and experiences of taking part in research need to be evaluated.Objectives: The aim was to describe and evaluate a PPI process working with bereaved adolescents to develop a self-management mobile app for adolescents in grief.Methods: The PPI process consisted of four workshops during which the app's logo, colours, name, content,

SUBMITTER: Rhodin R 

PROVIDER: S-EPMC11249156 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature