Supporting people with Motor Neuron Disease (MND) to make decisions about gastrostomy feeding tube placement: a survey of UK healthcare professionals' practice and beliefs.

ABSTRACT:

Objective

Understand the practice and beliefs of healthcare professionals (HCPs) supporting the decision-making of people with MND (pwMND) about gastrostomy placement, including identifying differences between professions.

Methods

An online cross-sectional survey disseminated to HCPs who support the decision-making of pwMND about gastrostomy placement.

Results

A total of 139 participants completed the survey including representation from a range of healthcare professions. A third (36/101, 36%) initiated discussions about gastrostomy later in practice than they believed was ideal. In relation to the outcome of declining compared to accepting gastrostomy, participants were more likely to discuss aspiration (80% vs. 68%), choking (76% vs. 58%) and prognosis (36% vs. 22%)

SUBMITTER: White S 

PROVIDER: S-EPMC11262427 | biostudies-literature | 2024 May

REPOSITORIES: biostudies-literature