An Ethnographic Study of Patient Life Experience in Early-Stage Parkinson's Disease in the United States and Germany.

ABSTRACT:

Introduction

Existing qualitative research on early-stage Parkinson's disease draws on patients' reported disease experience, aiming to capture the symptoms and impacts most relevant to patients living with the disease. As a complement to this research, the present study investigated the patient experience of early-stage Parkinson's disease from a holistic, ethnographic perspective. We explored the attitudes, beliefs, and social structures that shape how people understand and adapt to life with early-stage Parkinson's disease.

Methods

Researchers interviewed 30 people with early-stage Parkinson's disease, 10 relatives, and 10 neurologists and movement disorder specialists in the USA and Germany. Many of these interviews took place in-person, allowing researchers to spend tim

SUBMITTER: Carmody T 

PROVIDER: S-EPMC11263318 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature