The body as an obstacle and the "other". How patients with chronic inflammatory bowel diseases view their body, self and the good life.

ABSTRACT:

Background

Treatment of chronic inflammatory bowel disease (IBD) aims to improve patients' quality of life and the extent of treatment success is measured via patient reported outcomes (PROs). However, questionnaires used to collect PROs often include scales that are not specific to IBDs. Improving these scales requires a deeper understanding of patients' lived experience. With this study we give first insights and develop hypotheses on how patients with IBDs experience their body and self and how they adjust their life plans in the context of precision medicine (PM). The guiding question is to understand what they need to achieve a good life, while facing their disease.

Methods

We developed a conception of the "good life" that draws on Philippa Foot's "naturalized" approach

SUBMITTER: Erdmann A 

PROVIDER: S-EPMC11267929 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature