Changes in health-related quality of life during transition to adult healthcare: an international prospective cohort study.

ABSTRACT:

Objective

To study changes in health-related quality of life (HRQoL) in adolescents and young adults (AYAs) with chronic medical conditions across the transfer to adult healthcare and associations of HRQoL with transition readiness and experience of care.

Methods

Participants in this international (Finland, Australia) prospective cohort study were recruited in the year prior to transfer to adult health services and studied 12 months later. In addition to two HRQoL scales (Pediatric Quality of Life inventory (PedsQL), 16D), the Am I ON TRAC for Adult Care Questionnaire and Adolescent Friendly Hospital Survey measured transition readiness and experience of care and categorised by quartile. Data were compared before and after transfer to adult healthcare.

Results

In tota

SUBMITTER: Kallio MM 

PROVIDER: S-EPMC11287528 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature