Co-creating and hosting PxP: a conference about patient engagement in research for and by patient partners.

ABSTRACT: Research projects, initiatives and conferences that include patients as partners rather than as participants are becoming more common. Including patients as partners (what we will call 'patient partners') is an approach called patient engagement or involvement in research, and we will call it patient engagement throughout this paper. Patient engagement moves traditional health research conferences and events to include a broader audience for their knowledge exchange and community building efforts, beyond academics and healthcare professionals. However, there are few examples of conferences where patients are given the opportunity to fully lead. Our conference went beyond patient engagement - it was patient-led. Patient partners conceived, planned, and decided on all aspects of a virtual co

SUBMITTER: Richards DP 

PROVIDER: S-EPMC11287933 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature