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Dataset Information

Language to Support Dignity for Children With Advanced Cancer and Their Families.


ABSTRACT:

Background and objectives

Conversations about dignity are fundamental to person-centered care in pediatrics, yet practical language strategies to promote and support dignity remain understudied. To address this gap, we aimed to identify and characterize language used by pediatric oncologists to recognize and affirm dignity across advancing illness.

Methods

In this longitudinal prospective study, we audio-recorded serial disease reevaluation encounters between pediatric oncologists, children with cancer, and families across 24 months or until the child's death. Using a hybrid deductive-inductive qualitative approach, we defined dignity language a priori on the basis of existing descriptions of dignity in the literature and then conducted a content analysis to refine the defin

SUBMITTER: Humphrey C 

PROVIDER: S-EPMC11291958 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature