Genetic counselling legislation and practice in cancer in EU Member States.

ABSTRACT:

Background

Somatic and germline genetic alterations are significant drivers of cancer. Increasing integration of new technologies which profile these alterations requires timely, equitable and high-quality genetic counselling to facilitate accurate diagnoses and informed decision-making by patients and their families in preventive and clinical settings. This article aims to provide an overview of genetic counselling legislation and practice across European Union (EU) Member States to serve as a foundation for future European recommendations and action.

Methods

National legislative databases of all 27 Member States were searched using terms relevant to genetic counselling, translated as appropriate. Interviews with relevant experts from each Member State were conducted to val

SUBMITTER: McCrary JM 

PROVIDER: S-EPMC11293827 | biostudies-literature | 2024 Jun

REPOSITORIES: biostudies-literature