'Someone must do it': multiple views on family's role in end-of-life care - an international qualitative study.

ABSTRACT:

Background

Family is a crucial social institution in end-of-life care. Family caregivers are encouraged to take on more responsibility at different times during the illness, providing personal and medical care. Unpaid work can be overburdening, with women often spending more time in care work than men.

Objectives

This study explored multiple views on the family's role in end-of-life care from a critical perspective and a relational autonomy lens, considering gender in a socio-cultural context and applying a relational autonomy framework. It explored patients, relatives and healthcare providers' points of view.

Design

This qualitative study was part of the iLIVE project, involving patients with incurable diseases, their relatives and health carers from hospital and non

SUBMITTER: Tripodoro VA 

PROVIDER: S-EPMC11295216 | biostudies-literature | 2024

REPOSITORIES: biostudies-literature