The building of an institutional liver transplant registry: opportunities and challenges.

ABSTRACT: To improve current data systems for institutional decision-making, the Adult Liver Transplant Registry was established at the Hospital Italiano de Buenos Aires, Argentina. This article describes its design and implementation and reports on the outcomes for patients transplanted since its January 2020 launch. A multidisciplinary team designed the registry by identifying key variables from a literature review while considering balance between data depth and feasibility. Rigorous quality control measures were enforced, including monthly audits and staff training. Benchmark indicators for post-transplant outcomes were established. As of November 2023, the registry included 136 transplants. Its implementation and maintenance were straightforward, with no significant difficulties encountered. Ci

SUBMITTER: Marciano S 

PROVIDER: S-EPMC11295234 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature