Unraveling unmet needs in ketogenic dietary services: An ERN EpiCARE survey.

ABSTRACT: The implementation and potential of ketogenic dietary therapies (KDTs) have changed over time. The organization of KDT services, the availability of multidisciplinary teams, resources and support for patients and families still vary widely around the world. This diversity is reflected by a lack of consistency in reported outcomes, optimization of using KDT and KDT compliance. To highlight the unmet needs for KDT services, the ERN EpiCARE Ketogenic Dietary Therapy Special Interest Group (KDT SIG) conducted an online survey on KDT implementation and utilization, addressing the following topics: Use and completeness of guidelines and protocols; assessment of compliance and outcome parameters, sustainability and inclusivity in daily life. Consistently reported unmet needs included the lack of

SUBMITTER: De Giorgis V 

PROVIDER: S-EPMC11296111 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature